Nuriya Z. Musina
CIS Orphan Consortium; Sechenov University
Russian Federation

Nuriya Z. Musina, MSc, MBA, PhD, Associate Professor, Executive Director, CIS Orphan Consortium; Deputy Head, Expert and Analytical Center for Horizon Scanning in Healthcare, Sechenov University

1/2, office 3/3, Chongarsky Blvd., Moscow, 1175568/2; Trubetskaya str., Moscow, 119991

Ahmed Al Saidi
A’Sharqiyh University
Oman

Ahmed Al Saidi, MD, Chairman of the Board of Trustees for A’Sharqiyh University

Ibra, Ash Sharqiyah North Governorate, P.O Box 42, Ibra, 400, Sultanate Of Oman

Ayman W. El-Hattab
Burjeel Medical City; Khalifa University; MENA Organization for Rare Diseases
United Arab Emirates

Ayman W. El-Hattab, MD, PhD, Professor, Director, Genetics and Rare Disease Center, Burjeel
Medical City; Professor, Department of Medical Sciences, College of Medical and Health Sciences, Khalifa University; Founder and President,
MENA Organization for Rare Diseases

28th str., Mohamed Bin Zayed City, P.O. Box 9054, Abu Dhabi; Al Saada str., P.O. Box 127788, Abu Dhabi; Office 102-103, Floor 13, Head Quarter South, Dubai Science Park, Dubai

Helen Malherbe
North-West University
South Africa

Helen Malherbe, MSc, PhD, Associate Professor, Centre for Human Metabolomics, Desmond Tutu School of Medicine, Faculty of Health Sciences

Private Bag X6001, Potchefstroom 2520, Republic of South Africa

Prasanna Kumar B. Shirol
Organization of Rare Diseases India
India

Prasanna Kumar B. Shirol, BSc, MBA, Co-founder and Executive Director

Basavanna Nagar, Hoodi, Bengaluru 560048, India

Ulrike Schwerdtfeger
World Health Organization Headquarters
Switzerland

Ulrike Schwerdtfeger, Assessor iur., Technical Officer

20, Appia Ave., 1211 Geneva 27, Switzerland

Dilorom I. Akhmedova
Traditional Medicine of Tashkent State Medical University
Uzbekistan

Dilorom I. Akhmedova, MD, DSc (Med.), Professor of the Department of Hospital Pediatrics

2, Farobi str., Tashkent, 001109

Tamara U. Aripova
Academy of Sciences of the Republic of Uzbekistan
Uzbekistan

Tamara U. Aripova, MD, DSc (Med.), Professor, Academician, Director, Institute of Immunology
and Human Genomics

74, Yashnobod str., Tashkent, 100125

Bakhyt M. M. Baigaliyeva
Association for Assistance to Patients with Rare Diseases in the Republic of Kazakhstan
Kazakhstan

Bakhyt M. Baigaliyeva, MD, Founder and Head 

3/3-2, Bogenbay Batyr Ave., Astana, 010000

Zaure D. Dushimova
JSC “Research Institute of Cardiology and Internal Diseases”; Al-Farabi Kazakh National University
Kazakhstan

Zaure D. Dushimova, MD, PhD, Associate Professor, Head of the Adult Rare Disease Coordination
Center; Associate Professor

120 Aiteke Bi str., Almaty 050000; 71, Al-Farabi Ave., Almaty, 050040

Lazzat M. Esbatyrova
Salidat Kairbekova National Research Center for Health Development, Ministry of Health of the Republic of Kazakhstan
Kazakhstan

Lazzat M. Esbatyrova, MSc, Director, Department for Pharmaceutical Policy Improvement

8, Mangilik El Ave., Astana, 010000

Nadezhda V. Gasparyan
Arabkir Medical Center – Institute of Child and Adolescent Health
Armenia

Nadezhda V. Gasparyan, MD, Pediatric Neurologist

30, Mamikonyants str., Yerevan, 0014

Sergey N. Illarioshkin
Brain Institute, Research Center of Neurology; A.I. Yevdokimov Moscow State University of Medicine and Dentistry
Russian Federation

Sergey N. Illarioshkin, MD, DSc (Med.), Professor, Academician of the Russian Academy of Sciences, Deputy Director and Director of the Brain Institute, Research Center of Neurology; Head of the Department of Neurology

80, Volokolamskoye Shosse, Moscow, 125367; 20/1, Delegatskaya str., Moscow, 127473

Elena A. Kalinina
State Institution National Scientific and Practical Centre “Mother and Child” of the Ministry of Health of the Republic of Belarus
Belarus

Elena A. Kalinina, MD, Deputy Director 

66, Orlovskaya str., Minsk, 220053

Mekhpara Kazimova
Azerbaijan State Institute of Advanced Training of Doctors named after A. Aliyev
Russian Federation

Mekhpara Kazimova, MD, PhD, hematologist, Associate Professor

35, Muzaffar Hasanov str., Baku, AZ1012

Totu Keldibekova
Department for Medical Services and Pharmaceutical Policy, Ministry of Health of the Kyrgyz Republic
Kyrgyzstan

Totu Keldibekova, PhD, Chief Specialist

148, Moskovskaya str., Bishkek, 720040

Alexey S. Kolbin
First Pavlov State Medical University of Saint Petersburg
Russian Federation

Alexey S. Kolbin, MD, DSc (Med.), Professor, Head of the Department of Clinical Pharmacology and Evidence-Based Medicine

6–8, Lva Tolstogo str., Saint Petersburg, 197022

Alexander V. Kostyuk
House of Ministries
Kazakhstan

Alexander V. Kostyuk, MD, PhD, Advisor to the Minister of Health of the Republic of Kazakhstan

8, Mangilik El Ave., Astana, 010000

Elena A. Maksimkina
Federal government agency “Federal Center for Planning and Organization of Drug Provision for Citizens” of the Ministry of Health of the Russian Federation”
Russian Federation

Elena A. Maksimkina, DSc (Pharm.), Professor, Director 

6, building 1, Vorontsovskaya str., Moscow, 117186

Timur O. Narbekov
National Center for Oncology and Hematology of the Ministry of Health of the Kyrgyz Republic; I.K. Akhunbaev Kyrgyz State Medical Academy
Kyrgyzstan

Timur O. Narbekov, MD, Hematologist, Expert in Hemophilia and Rare Orphan Diseases; Assistant Professor, Department of Family Medicine

190, Akhunbaev str., Bishkek, 720064; 92, Akhunbaev str., Bishkek, 720020

Evgeniya V. Nazarova
NRC Institute of Immunology FMBA of Russia; National Association of Rare Disease Experts
Russian Federation

Evgeniya V. Nazarova, MD, DSc (Med.), Deputy chief physician of NRC Institute of Immunology FMBA of Russia ; Executive director of National
Association of Rare Disease Experts

24 Kashirskoye Shosse, Moscow, 115522; 1/2, office 3/3, Chongarsky Blvd., Moscow, 117556

Antonina A. Pak
National Children’s Medical Center of Uzbekistan, Ministry of Health of the Republic of Uzbekistan
Uzbekistan

Antonina A. Pak, MD, Head of the Department of Specialized Pediatrics and Medical Genetics

294, Parkent str., Tashkent, 100171

Sergey I. Savashinsky
Eurasian Cooperation for Clinical Guidelines and Public Health Development
Kazakhstan

Sergey I. Savashinsky, MD, PhD, Chief Executive Officer of the Eurasian Cooperation for Clinical Guidelines and Public Health Development

8/2, Turkistan str., Esil District, Astana, 010000

Alexandr S. Semenov
Republican Scientific and Practical Center for Medical Technologies, Informatization, Administration and Management of Health of the Ministry of Health of the Republic of Belarus
Belarus

Alexandr S. Semenov, MD, PhD, Associate Professor, Deputy Director

7A, Petrusya Brovki str., Minsk, 220013,

Tatiana V. Shamanskaya
Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Ministry of Health of the Russian Federation
Russian Federation

Tatiana V. Shamanskaya, MD, DSc (Med.), Pediatric Oncologist, Head of the Department of Embryonic Tumors Research, Institute of Oncology, Radiology and Nuclear Medicine

1, Samory Mashela str., Moscow, 117997

Vadim V. Tarasov
Sechenov University
Russian Federation

Vadim V. Tarasov, DSc (Pharm.), Vice-Rector for Scientific and Technological Development

8/2, Trubetskaya str., Moscow, 119991

Ernas T. Tuleutaev
Republican Center for Orphan Diseases, Corporate Fund University Medical Center
Kazakhstan

Ernas T. Tuleutaev, MD, DSc (Med.), Pediatrician, Head 

5/1, Kerei and Zhanibek Khans str., Astana, 010000

Yuri A. Zhulev
Russian Hemophilia Society ; Russian Union of Patients
Russian Federation

Yuri A. Zhulev, President, Russian Hemophilia Society ; Co-Chair, Russian Union of Patients

5/2 Naryshkinskaya Alley, Moscow, 125167; 5/1, Naryshkinskaya Alley, Moscow, 125167

Nadezhda I. Zozulya
National Medical Research Center for Hematology of the Ministry of Health of the Russian Federation
Russian Federation

Nadezhda I. Zozulya, MD, DSc (Med.), Head of the Clinical Diagnostic Department of Hematology and Hemostasis Disorders 

4, Novy Zykovsky Proyezd, Moscow, 125167

Alexander G. Rumyantsev
CIS Orphan Consortium; Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Ministry of Health of the Russian Federation
Russian Federation

Alexander G. Rumyantsev, MD, DSc (Med.), Professor, Academician of the Russian Academy of Sciences, President, CIS Orphan Consortium, ,
Russia; President, Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Ministry of Health of the Russian Federation

1/2, office 3/3, Chongarsky Blvd., Moscow, 117556; 1, Samory Mashela str.,
Moscow, 117997